Taking the “Care” Out of Healthcare

I can’t stop thinking about this week’s news  that the Trump Administration created a new division within the Department of Health and Human Services (HHS) to be focused on “conscience and religious freedom”. Even more ironically, the work of the division will fall under the Office of Civil Rights. This new division is thought to pave the way for healthcare workers to refuse to perform certain types of care such as prescribing/dispensing birth control or performing/assisting with abortions. Also, it’s thought to create space for healthcare workers to refuse to treat certain groups of people based on their religious or conscience objections, which while not saying it outright, is a direct threat to individuals who are LGBTQI.

As someone who spent a considerable portion of my career working in healthcare, both in patient care and as an administrator, I can’t process that our government is providing legal protections for healthcare workers to discriminate against their patients. Understandably, when considering the impact of this new division in HHS, many people focus on the “procedures” component, worried how this might impact a woman’s right to access abortion services. But for all of the job opportunities in healthcare, for providers at every level, I feel confident that most people who have moral objections to abortion have already sought out positions where they are not confronted with the procedure. Those RNs already work somewhere other than the local Planned Parenthood clinic.

I’m more concerned about the providers who won’t treat certain groups of people and pharmacists that won’t fill certain prescriptions. For individuals living in rural areas, there may only be one hospital in the region, one pharmacy. What are your options when the local physician decides they will not treat gay people? When your local pharmacy won’t fill your transition-related prescriptions because the pharmacist refuses to treat patients who are transgender? When your local OBGYN won’t prescribe birth control?

Who’s rights are most important? For me this is quite simple. When I went into exercise physiology because I wanted to work in cardiac rehabilitation, where I would be taking care of heart patients, it never occurred to me that I might choose which patients for which I would care. I would work with the “good” patients, who made every lifestyle change I recommended, and the “bad” ones…even the one who tried-and sometimes succeeded-to sexually assault the staff every time he came to class. I can’t comprehend a situation where I would have denied care to a patient. I went into that profession because I cared deeply about people and wanted to make a difference. I think that same motivation drives many nurses, doctors, and other allied health professionals. But they don’t teach us to only take care of the patients we “agree” with, our job isn’t to pass judgement on who is worthy of care. But that is the new world we are living in, as the oaths that healthcare professionals take now come with a government-sanctioned caveat. As one friend eloquently pointed out (shout-out to Mary!), are you really a healthcare provider if you don’t provide healthcare for all?

And what does it say about us as a society when our government is in the business of sanctioning discrimination? That some of our congresspeople view “freedom” as discrimination against others? (House Majority Leader Kevin McCarthy, R-California, stated regarding the Obama administration’s Office of Civil Rights: “In the past this office sent the message, now is not the time for freedom, it is time for you to conform. What a different one year makes.”) If “conforming” means that all people are treated equally, then I’m all for it.

Every single human should be able to show up to an emergency room and know they’ll be treated with care and dignity. Every single human should be able to get their scrips filled at their local pharmacy, no questions asked. Every single human should have a relationship with their provider that is free from judgement and discrimination. If this is not freedom, then I think we need to reconsider our definition of the term. If a nurse doesn’t want to care for patients, she should not work in a hospital. If a pharmacist does not want to fill scripts, they shouldn’t work in a pharmacy.

And while I haven’t attended church in quite a long time, I regularly attended services while growing up. None of this aligns with the lessons of our little Protestant church.  We were taught not to judge one another, to love each other, and to treat others as we wished to be treated. We learned to care for people who were different from us, to help those in need. Nowhere in our Sunday School lessons did we talk about only certain types of people being worthy of our care. There wasn’t one sermon about discriminating against our fellow humans. While I am deeply suspicious of any religion that denies any human their humanity, I respect an individual’s right to worship what they choose. But to consider that our government is providing such religions power over our access to healthcare is terrifying. A government that stands for the rights of ALL citizens would be ensuring and protecting that very access, not compromising it.

Individuals who are LGBTQI already suffer known health disparities.    For example, youth who are lesbian, gay or bisexual seriously contemplate suicide at three times the rate of heterosexual youth. Also, in a national study 40% of transgendered adults reported having attempted suicide, with 92% of those attempts having been before the age of 25. Transgender women are at an unusually high risk of contracting HIV, and transgender individuals receive an HIV diagnosis at three times the national average. (Sources: The Trevor Project and CDC) The health care system is already failing these individuals. The new policies will only exacerbate these disparities.

While there aren’t any quick or easy solutions, it is one more reminder that our democracy is not a spectator sport. It is incumbent upon all of us to vote and engage with our congresspeople. Our elected officials are a reflection of us, and every election matters deeply. And when someone says to you that politics don’t matter, respectfully engage with them about how it does. Because of this administration, a large number of Americans now wonder if they can go to their local emergency department and be treated. Not treated with dignity, or treated with care, but treated period. It says a lot about who we are.


“Nothing is so essential as dignity…Time will reveal who has it and who has it not.” ― Elizabeth Gilbert 

 

The Thing About Streaking

I admire streakers. People who can do something every. single. day. without taking a break. I know several runners, one of whom is my sister, who are in the midst of multi-year running streaks. The longest I’ve gone is 35 days and it felt like an eternity. Beyond eating and sleeping (my two favorite things in the world), there’s nothing I really want to do everyday. I run six days per week not seven, eat well most of the time but not all of the time.

I’ve read extensively about the benefits of doing something every day, whether it’s running or following a diet such the Whole30, which requires complete adherence to a set of rules for 30 days in order to “complete” the program. I’ve tried (and failed) the Whole30 no less than ten times. My one-and-only run streak spanned the holidays and lasted just over a month. I understand the benefits to streaking – the problem solving that’s cultivated, the commitment that’s developed – but those benefits don’t seem to apply to me. Instead, I end up with what can only be described as anxiety and feel nothing but relief when it’s over.

I’ve wondered if my aversion to streaking is somehow related to a tendency to get overly fixated on numbers. Knowing this about myself, I don’t weigh often or track food intake regularly. Somehow, I’m able to track running-related data without adverse consequences. I think that because I started running when I was so young (11 years old) and ran for over ten years before I kept a training log and tracked mileage, I have a strong connection to running itself that exists independent of the data I keep. I’ve gone without collecting any running-related information for multiple several month stretches over the last few years as I’ve struggled with my health, after logging data very consistently for the previous ten years, and only picked it back up when I regained interest in the information. Running data is just data, and in that it is unique.

So in that context, it’s interesting that my only New Year’s Resolution involves a streak of sorts. After losing track of my meditation practice early last year, I decided to take advantage of the fresh start the turn of the calendar provides and get back to it. As someone who is easily distracted and often stuck in my head, meditation really helps quiet the noise. Also, I want to create some space between the things that happen and my reactions to those things. Whether it’s as innocuous as an annoying social media post (Trump’s daily Twitter barrage) or something more “legitimate”, I want to be more intentional and measured in regards to what thoughts wander through my head. Maybe more eye rolls and fewer f*cks? I’m not sure what form the shift will take, but I’m curious to find out.

When I’m meditating regularly, my focus is improved, mental restlessness reduced, and my head just seems quieter. But because my inner dialogue is so active, meditating is HARD. It takes me a good while to get into a groove, to get to a place where I can really settle in and be in a place of quiet. Like with anything that’s difficult, it can be hard to push through the first few weeks when it feels like more of a battle than a practice. Which is where the streak comes in. I want to force myself to lean into the discomfort and the difficulty, not put it off until tomorrow, which can be easy to do when you aren’t doing it every day. I’m only shooting for a few months, as once I get to a place where it feels less of a fight I’ll probably go to 5-6 days per week, just like with running. But first I want to cultivate the practice. Hopefully the meditation itself will alleviate any of the anxiety from a streak, allowing them in a sense to cancel each other out (seriously).

So far, my streak is six days long. I’ve meditated at least ten minutes each day, twice right before going to sleep because I forgot earlier in the day. I’m working to develop a routine so that it fits more naturally into the fabric of my day, but at this point I’m just happy that is happens, even if it’s right before bed. My goal is to work up to 30 consecutive minutes. I’ll drop the streak if it becomes counterproductive, but I have a good feeling about it. I’m usually not one to make “resolutions”, preferring instead to greet the new year with intentions or priorities as I like to leave room for things to evolve. But this is one time where I don’t want it to evolve. I want to make this happen, so I’ve named it. And now I’ve put it here. So here’s to 2018…the year of the quiet mind and more intentional swearing.


“Sitting still is a pain in the ass.” ~ Noah Levine